I often hear people ask those of us who aren’t married and have no children, “Who’ll take care of you when you get older?” Interesting question. Yes, it has crossed my mind many times and I used to believe that my brother and/or my friends would take care of me. I ‘ve never been uncomfortable on my own and living by myself is something I treasure. I never have to argue over what television show to watch, clean up after someone else or let him know what time I’ll be home. If I want to waltz around the house naked, there’s no one to point out my flabby parts or use that as the right time to suggest a healthier diet. So it’s not loneliness that concerns me – well not now anyway. I might one day eat those words but right now, I don’t see that as the issue.
But what if I live to a ripe old age, and most of my friends and my brother are gone? I must admit, it is a concern. On the other hand, working in hospice, I see how abysmally family members can treat each other and fight over money and possessions. The patient is more often than not the one who bears the brunt of the disrespect and, sometimes, outright neglect. So, if I were married and had a bunch of children, could I necessarily count on any of them to do the right thing by me? I think not. Many times the children dislike each other and fight over who’s right concerning the patient’s care. The thing is – it’s usually the patient who suffers because the kids aren’t making a decision on what’s best for the patient; they’re deciding based on their own comfort levels. I guess I’m glad I won’t have a child who’s so determined to keep me here that he/she makes hospice staff withhold medications that would make me comfortable so I can be what they would call “alert” even though I’m thrashing around in the bed.
My biggest concern is the in-between stage – the stage where I’m no longer able to live on my own, require constant care but am not hospice appropriate. I hear horrible stories about the care the elderly get in many of the nursing homes. And I can see it clearly. Nursing homes, like most other businesses, have a plethora of employees who are primarily interested in the paycheck and not the job. Many of them have little or no empathy for the elderly people and how could they? They have zero understanding of living with legs that no longer hold them up, or having to take a ton of medications that take care of one thing but bring all kinds of side effects that may make the elderly person seem “slow, ” when, in fact, the brain works just fine. Those are the circumstances that concern me. I’m not sure the outcome of being in that environment has anything to do with whether or not I have children – and children who truly care about my best interests to boot.
So the fact that I don’t have a husband or children doesn’t bother me about growing older and ending up in a nursing home. What concerns me is ending up in a home where the culture is one of “just wheel them into a corner and let them sit all day.” And I’ve seen it. We had a case of a patient who was brought into the hospice to find placement in a different home because the one where he had been living had wheeled him outside ostensibly to “get some sun and fresh air” and left him in the Las Vegas summer sun for the better part of a couple of hours. I worry that I’ll need to go to the bathroom and someone will be irritated that I ring for help too often. I worry that I’ll reach a point where I have to defecate in a diaper and no one will come to change me for hours and hours. I worry that I’ll end up with Stage IV decubitus ulcers because it’s too much trouble to constantly turn me. I worry that I’ll be hungry but someone forgot to take me down to the lunch room to eat. I worry that I’ll be physically broken but mentally alert and people will come in and talk to me like I’m a two-year-old.
Bottom line: it’s the people in the facilities who will be tasked with my day-to-day comfort that worry me.