I figure this is probably me one day, fighting off death. I hope I have the energy for that.
So here’s the deal: I work in hospice. I’m not sure if those of us who spend years working with the dying just get used to death and think everyone else must feel the same way or if we jump to conclusions that are perhaps inaccurate.
One is when I hear a doctor talk about how he would counsel an elderly patient that his symptoms were not going to improve, he had no quality of life left and he’d had a nice, long life so perhaps it was time to take a stronger medication that would take care of his pain but would also make him groggy. He could then just die peacefully rather than stay wide awake and painful. I understand that from a medical point of view but I also think there’s a lot more going on with an individual than the physical. Being old and uncomfortable doesn’t necessarily mean he’s ready to die. There’s also the emotional and the spiritual to work into that equation and I often think they carry more weight than the physical concerns.
We spend our entire lives encouraging people to never give up; to fight, fight, fight; to believe in miracles; to try something new if the first thing doesn’t work; etc. At what point should that elderly person toss out everything he’s spent his life doing and quit? Why is it unreasonable to assume that someone might want to live a little longer, even if it’s a few days?
And then there’s the family. I’ve also heard things like, “She’s 90 years old. It’s time to let her go.” I can only assume these comments are a result of working with so many frail and suffering people for years and years. I understand that the goal is to make sure the patient is not in pain but what if that person prefers pain to death? And I don’t think family members pay any attention to the person’s age as an indicator of it being time to let them go. Loss is loss, regardless of the age, and it’s hard to let go. I’m pretty sure no one thinks, “Oh right. Ninety-one. Time to go Grandma!” Given a choice, I’ll bet they’d opt for 92 or, better yet, 110 if they could.
Or maybe the issue is me and no one else finds those comments bothersome at all. I haven’t arrived at a point where I think I’ll be okay when my time comes and so I can’t fathom being told it’s time to stop trying to live. I have tons of things I still want to see and do and hear and feel and I can’t imagine not being me any more, not having a consciousness. I realize that if I go to sleep and never wake up, I’ll never know the difference but making a conscious decision to do that is scary. What if I’ve given up and maybe I could’ve had one more conversation with my brother or laughed with a friend or spent a little more time coming to terms with the fact that the gig is up?
Don’t get me wrong. I understand that when you have a terminal disease, you’re going to die and maybe sooner than you’d like. I just don’t understand thinking the family or even the patient should be okay with that simply because it’s logical. The heart’s not always logical.